The resources on this page are intended to help guide researchers in understanding the strengths and limitations of using cancer registry data for research.
Historically, this page presented detailed data assessment profiles for select variables, and these assessments are in the process of being updated. Data Item Assessments will be updated with a focus on identifying outliers and data that is “fit for use” for selected variables. Additional variables will be added to the notes as well. Data Item Notes provide additional information about limitations of selected variables and the potential impact on interpretation of results. Any publications focusing on data quality and interpretation will be added to the Technical Assessments.
- Data Profile and Race
- Data Profile for Summary Stage
- Data Profile for Diagnostic Confirmation of Malignant and Non-Malignant Brain Tumors
- Data Profile for SSFs for Prostate
- Data Profile for CS Tumor Size
- Data Profile for ER, PR, HER2 for Breast Cancer
- Data Profile for Site-Specific Factor (SSF)
- Data Profile for Surgery of Primary Site
- Data Profile for Radiation
- Howe HL, Jamison M, Havener L, Chen VW, Ries L. Site-Specific Comparison of Summary Stage 1977 and Summary Stage 2000 Coding. Springfield, IL North American Association of Central Cancer Registries, June 2005.
- Phillips JL (editor). Summary Stage: Data Effects of the Changes in 2000. Springfield (IL): North American Association of Central Cancer Registries, December 2003.
- Porter R et al, Exploring the Internal Consistency of Registry Data on Stage of Disease at Diagnosis, in Chen VW. (Ed.) Cancer in North America, 1990-1994. Sacramento, CA: North American Association of Central Cancer Registries, April 1998 Vol 1; VI-1- VI-12.
- Fulton J et al. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries. Springfield (IL): North American Association of Central Cancer Registries, 2001.
- Ostrom QT, Price M, Neff C, et al. CBTRUS Statistical Report: Primary Brain and Other Central Nervous System Tumors Diagnosed in the United States in 2015-2019. Neuro Oncol. 2022;24(Suppl 5):v1-v95.
- Hofer BM, Weir HK, Eckstrand A, Musonda K, Sherman R. The Burden of Rare Cancers in North America. J Registry Manag. 2023;50(4):123-137.
