The NAACCR Inter-Registry Data Exchange (IDE) Guidelines provides population-based registries with operational guidelines to collect and exchange data on residents that are diagnosed or treated in another state.
- Inter-registry Data Exchange Guidelines – June 2025
Capturing all newly diagnosed cancer cases is essential to any central cancer registry. Sometimes patients are diagnosed and/or treated in an area that is different from their residence, and agreements must be made between registries to share data. NAACCR has developed a model National Interstate Inter-Registry Data Exchange Agreement which will allow states to exchange data on cases diagnosed or treated in other areas. This single agreement will take the place of multiple inter-registry data exchange agreements. See the list below of the states that have signed the agreement.
- Inter-Registry Data Exchange Agreement – Revised July 2021
Inter-Registry Data Exchange Participants (Last Update May 2026)
Current Contacts
| Registry | Date Last Signed | Version | Addendum | Expires | Inter-registry Data Exchange Contact Name |
|---|---|---|---|---|---|
| Alabama Statewide Cancer Registry | 9/27/2021 | July 2021 | YES | NA | Mark K Jackson |
| Alaska Cancer Registry | 8/3/2021 | July 2021 | NO | NA | Julie Cleaton |
| American Somoa/Pacific Regional Cancer Registry | 3/7/2022 | July 2021 | NO | NA | Janos Baksa |
| Arizona Cancer Registry | 10/1/2021 | July 2021 | NO | NA | Dana Doyle |
| Arkansas Central Cancer Registry | 8/3/2021 | July 2021 | NO | NA | Lindsay Collins |
| Bermuda Cancer Registry | 4/14/2022 | July 2021 | NO | NA | Katura Horton-Perincheif |
| California Cancer Registry | 1/29/2016 | Prior Version | YES | NA | Deepa Padmanaban |
| Cancer Data Registry of Idaho | 8/30/2021 | July 2021 | NO | NA | Denise Jozwik |
| Cancer Registry of Greater California | NA | NA | NA | NA | Jenna Mazreku |
| Colorado Central Cancer Registry | 8/26/2021 | July 2021 | NO | NA | Debbie Darnell |
