Data Standards & Data Dictionary, Volume II

Data Standards & Data Dictionary, Volume II

Version 16

The Data Standards and Data Dictionary is intended for hospital and central cancer registries, programmers, and analysts, this provides detailed specifications and codes for each data item in the NAACCR data exchange record layout.

Previous Versions of Volume II

Click here to go to the archive of all prior versions of Standards Volume II. The archive includes the Volume II PDF, Access database, and revision page(s) for each of the previous versions.

NAACCR Standards Implementation Timeline

The NAACCR Standards Implementation Timeline provides deadlines to facilitate successful implementation of revisions to NAACCR Standards for Cancer Registries Volume II, Data Standards and Data Dictionary. Revisions to the standards include, but are not limited to, changes to existing data items and proposing new data items for implementation.

Any change to standards has an impact on registry operations, funding agencies, and users of the data. A multidisciplinary group from central registries, software vendors, and standard setters developed a change management process. The purpose of the change management process is to facilitate successful implementation of change to cancer registry data collection standards, requirements, and systems. The Change Management Board (CMB) will review, evaluate and approve requests for change through an assessment process intended to determine the feasibility of the change and assess the impact on the cancer surveillance community.

Complete and submit the Request for Change Form to propose an idea for change.

 

The CMB may request a feasibility analysis. The goal of the feasibility analysis is to ensure the data are available and are of sufficient quality for the North American cancer surveillance system.

Volume II Data Dictionary Export Tool

NAACCR has developed a tool to generate a custom version of Chapter X: Data Dictionary. This tool utilizes Python and has been tested on Windows, Mac OS, and Linux. Step-by-Step instructions on how to install and use the tool and a zipped version of the tool are provided below. Please read the instructions prior to downloading the tool. If you wish to submit any issues with the tool or want to offer improvements, please do so through GitHub. This tool is being released under the GNU GPL. If you have questions or comments, please contact info@naaccr.org.

NCHS codes are commonly used to identify place of birth on death certificates. The NCHS to ISO Code Crosswalk spreadsheet provides the ISO equivalents, where they exist, for NCHS codes. The ISO alpha-3 codes are used for the data items below, effective with Volume II, Version 13.

  • Addr at DX–Country
  • Addr Current–Country
  • Birthplace–Country
  • FollowUp Contact–Country
  • Place of Death–Country

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