Call for Data

Call for Data

Information for the NAACCR Call for Data

Each year, NAACCR has a Call for Data for its certification process and to produce a new set of Cancer in North America (CiNA) data products.

The NAACCR Data Use and Research and the Data Evaluation and Certification Committees invite you to submit incident cancer cases from your registry for the years 1995 through 2016 to be used for cancer statistics, surveillance, and research projects and activities. All data must be submitted using the NAACCR Record Layout Version 16.

In addition NAACCR is requesting that registries also include 2017 cases in their submission file. The 2017 cases will be used for evaluation purposes only and will not impact inclusion in CiNA or Certification.

All variables must conform to NAACCR standard definitions and codes, as described in Volume II, Version 16 of the NAACCR Standards for Cancer Registries: Data Standards and Data Dictionary.

Call for Data Instructional Webinar

Questions, comments, concerns? See the NAACCR Call for Data Forum or contact Recinda Sherman rsherman@naaccr.org.

*The date of latest update is listed below

Supplemental Information

*The date of latest update is listed below

  •  NAACCR Prep v1.6.08 – 11/20/18
    • 11/20/18 update was a minor fix. If the input file is an unrecognized format, additional information has been added to the error message indicating the record length or missing XML tags.
    • 11/7/2018 update was a minor fix to custom dictionaries that can be exported from NAACCR*Prep. The custom dictionaries are used by users or programs that want to be able to process an XML data file that is generated by NAACCR*Prep.
    • 10/31/18 update includes 3 NPCR calculated fields selected by default when creating the NPCR file submission.
    • 10/30/18 update addresses a potential issue with the VPR-CLS file. NAACCRPrep may fail if it encounters certain non-printable/special characters in your data file. If this happens, we will provide you with a SAS workaround (please contact Recinda Sherman rsherman@naaccr.org). The 10/30 update will indicate which line has the incorrect record length.
    • 10/26/18 update allows registries to create a VPR-CLS file that can include diagnosis years prior to 1995.
    • Changes for this year
      • This year NAACCR Prep is calculating the variable, County at Diagnosis-Analysis (#89). This variable is calculated and stored in the state-specific fields until we move to NAACCR Layout v18 or later.
      • NAACCR Prep can now accommodate an XML incoming file as well as generate the requested XML submission file.
      • NHAPIIA: Change the name of the output file
      • URIC and RUCA codes were changed from 2 characters to 1 character. The unknown values (96-99) were changed (A-D). The locations to where these fields were output within the state/requestor items section was changed.
      • The MOE variables for the ACS data (American Community Survey) were removed to make room for race-specific poverty fields for evaluation.
  • EDITS50 (.SMF) Call for Data Edits Metafile – (11/14/18)
    • A few edits were removed from the Canadian edit set and the Combined edits set. Some minor modifications were made to existing edits.
    • If your submission file passed the previous version of edits, there is no need to download this updated version.
    • Changes since last posting– (11/14/18)
    • Changes since original post  – 10/23/18
  • Link*Prep v1.6 – 9/18/18
    For use in creating the VPR-CLS linkage file, Link*Prep is a utility that standardizes and edits key linkage data items (including street address) and creates a re-coded patient ID.

SAS Programs

The SAS programs listed below are included in NAACCRPrep. They have been posted to give central registry software developers the option to incorporate these programs into their software. If your software does not include these programs, please run your file through NAACCRprep prior to submission.

Survival

Here are the 2018 CFD “Calculate Survival Time In Months” and “Create Cause Specific And Other Death Classification” SAS programs.  The programs can be run together, one after another (order doesn’t matter), or independently.  If run together, they should use the same cutoff setting. Note: links below take you to the most updated programs available for download on the SEER website.

The submission process has changed this year! Please read the following closely.

We have developed a single site where you can login using MyNAACCR username/password and submit your CFD file, complete your electronic submission forms, and post your signed Data Assurance Agreement and consent forms.

If you have completed the Call for Data electronic submission forms in the past, you already have the permissions to use the new site. If you have not completed them in the past or if you not sure if you have completed them in the past, please contact us at info@naaccr.org. You can verify if you have a MyNAACCR account here. If you do create a new account you will then need to contact us in order to submit for your registry.

The deadline for submission is 11:59 PM eastern time on Monday, December 3, 2018.

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