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CANCER DATA STANDARDS

One of the fundamental necessities of cancer surveillance is for users of cancer information to be assured that case definitions, coding practices, and conversions of medical terminology to useful categories is standardized. This enables compilation of case-specific information into useful and meaningful registers. It also enables meaningful comparison of data across different registries.

When NAACCR, Inc. was first organized, it focused its efforts to achieve consensus on cancer registration standards among the many standard setters in the United States and Canada. They include the American College of Surgeons, the National Cancer Institute, and the Canadian Cancer Registry at Statistics Canada. Today nearly all registries throughout the United States and Canada have adopted the NAACCR consensus standards. These standards are updated annually. Maintaining current standards to meet the needs of the NAACCR community is an ongoing and major NAACCR activity.

Data Standards for Cancer Registries - Volumes I-V

• Request Addition of a New Data Item to Volume II or Volume V
• Request Change to an Existing Data Item in Volume II or Volume V

 

Implementation Guidelines

Inventory of Best Practice Assurances of Data Confidentiality (PDF)

NAACCR Guideline for Enhancing Hispanic/Latino Identification: Revised NAACCR Hispanic/Identification Algorithm (NHIA v2) , Update as of September 21, 2005 (PDF)

• Background information on enhancing identification of Latino cancer incidence, a descirption of the NAACCR Hispanic Identification Algorithm (NHIA), including flow charts and a computerized version of the NHIA algorithm
• NHIA v2 Process Map Updated as of September 21, 2005 (PDF)
• SAS Code for NHIA v2 Updated as of September 21, 2005
• 1990 Hisp Surname List for SAS NHIA v2 code
• SPLONG. DAT (needed for NHIA v2 to run)
• State County Hisp pops 2000 (needed for NHIA v2 to run)

CRC Checksum Program Information

Site-Specific Comparison of Summary Stage 1977 and Summary Stage 2000 Coding

NAACCR Real-Time Reporting

• NAACCR Real Time Reporting Task Force - Report to the Board (PDF - Jan. 2006)
• NAACCR Real Time Reporting Recommendations (Word - Approved April 19, 2006)