Restriction 1: Research efforts as described in item 7c or other third party data releases not specifically covered under item 7 that involve the release of identifiable or potentially
identifiable data received from Michigan to persons outside the receiving registry are not permitted unless approved in writing by the MCSP. Researchers in such cases must
submit an application and their research protocol to the MCSP for review and approval, as required by Michigan regulations [R 325.9054(5)]
Restriction 2: All public health research involving access to Massachusetts Department of Public Health (MDPH) information that would include cancer diagnoses made in Massachusetts facilities to residents of other states must be reviewed by the Massachusetts Department of Public Health's Research and Data Access Review (RaDAR) IRB.
Restriction 4: Data received from Idaho shall not be included in research conducted by receiving registry without prior approval from the Cancer Data Registry of Idaho (CDRI).
Restriction 5: Release of Virginia Cancer Registry (VCR) records containing identifiable patient information is not permitted if direct patient contact may result from the release. If a research request might result in direct contact with a patient whose information VCR provided, the receiving registry must notify VCR and receive written consent from VCR before releasing such records.
Restriction 6: In no event shall the Texas Cancer Registry bear liability for loss, expense, attorneys' fees, or claims for injury or damages arising out of acts of omissions in the performance of this agreement on the part of a Receiving Registry.
Restriction 7: Data received from Alabama shall not be included in research conducted by receiving registry without prior approval from the Alabama Statewide Cancer Registry (ASCR).
Restriction 8: Please copy and paste the following URL to view the Utah Cancer Registy's full addendum: http://www.naaccr.org/LinkClick.aspx?fileticket=uRMriHvEp5c%3d&tabid=161&mid=523
Restriction 9: Any data supplied by the Oklahoma Central Cancer Registry (OCCR) which would involve contacting patients must have prior approval from the OCCR.
Restriction 10: Please copy and paste the following URL to view Wyoming Cancer Registry's full addendum http://www.naaccr.org/LinkClick.aspx?fileticket=ync7FcGZUJg%3d&tabid=161&mid=523
Restriction 11: Cancer case information supplied by the North Carolina Central Cancer Registry (NCCCR) can be used for any registry related purpose as outlined above but release of identifiable or potentially re-identifiable NCCCR data is not permitted without the prior written approval of the NCCCR registry. This includes release for research as listed in item 7c of the standard Agreement.
Restriction 12: 10. The Receiving Registry will notify the Sending Registry if, in the conduct of approved research or other
activities involving the Sending Registry’s data, there is a breach or misuse of a cancer patient’s identifying
information or potentially identifying information. Should a breach or misuse take place, the Receiving
Registry must notify the Sending Registry in writing within forty-eight (48) hours of the release of the data,
and shall take all feasible measures to mitigate loss or damages related to such breach or misuse, including,
but not limited to, bearing sole responsibility for reasonable costs, including attorneys’ fees, related to
mitigating the breach or misuse to the extent authorized by Mississippi state law.
Restriction 13: Cancer case information supplied by the Puerto Rico Central Cancer Registry (PRCCR) can be used for any registry related purpose as outlined above but release of identifiable or potentially re-identifiable PRCCR data is not permitted without the prior written approval of the PRCCR registry. This includes release for research as listed in item 7c of the standard Agreement.