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NAACCR Town Hall Webinars

Town Hall Webinars are free webinars on topics of concern to the NAACCR membership. Recordings of the live webinars have been posted to this page and may be downloaded for no charge. Each webinar has been posted as both a .wrf and .arf file. Both the .wrf and .arf formats are proprietary to WebEx and require the user to download the appropriate player prior to downloading the file. Both may be downloaded at http://www.webex.com/play-webex-recording.html.

The .wrf version of the webinar includes captioning for the hearing impaired. However, the audio quality is not as crisp as the .arf version. If you do not require captioning, the .arf version is recommended.

Meeting Information

12/3/14 | Delay Adjustment for NAACCR Registries

The link to a live recording is available at https://naaccrinc.webex.com/naaccrinc

Presenter: Eric J. (Rocky) Feuerer

The most recent diagnosis year included in a December submission to NAACCR is two years prior to the submission (e.g. the December 2014 submission includes cases diagnosed through 2012). Subsequent submissions include cases that had previously been unreported (delayed) and are added, while corrections may cause cases be removed or added to one category and removed from another. Because more cases are added than removed during this process, the observed rates from recent submissions are too small. Underreporting in the most recent years is largest, and this biases the trends downward. The most recent data points are considered the most important because any small change is seen as a potential harbinger of the impact of cancer control activities. To adjust for this, a statistical model has been developed to estimate “reporting delay-adjusted” rates, which represent projections to more closely approximate actual rates. Delay-adjusted rates have previously been developed for the SEER 9 and SEER 13 registries. This webinar will describe the process to develop delay adjustment factors for all registries in NAACCR that have a sufficient history of submissions in which the data are deemed “fit for use”. Delay adjustment factors will be developed based on the December 2014 NAACCR submission, and then shared for common use with NCI (the SEER Program), CDC (the NPCR program), and NAACCR. SEER*Stat has been modified to allow for the computation of delay adjusted rates and their standard errors for any set of registries. While each registry will have their own set of delay adjustment factors, in this first release delay-adjusted rates will only be reported for large aggregations of registries (e.g. SEER9, SEER 13, US, Canada, regions of the US). Individual registries will get a report with their own delay adjusted rates, and will have an opportunity to provide feedback to the modeling team prior to the development of delay factors based on the December 2015 submission.

A copy of the slides is available below

  • Delay Modeling Across NAACCR Registries
  • 10/1/14 | Surveillance Webinars Session 2 - Prevalance

    The link to a live recording is available at https://naaccrinc.webex.com/naaccrinc

    Cancer prevalence data are increasingly in demand for use across the cancer control continuum. For the next installment of the NAACCR Surveillance Webinar Series, Dr. Angela Mariotto of the National Cancer Institute and Mr. Steve Scoppa of Information Management Services Inc. will provide an overview of methodologies and tools that are available to estimate the prevalence of cancer.

    The session began with a discussion of the strengths and limitations of survey and registry-based data for calculating prevalence. We then contrasted “complete” and “limited-duration” prevalence estimates. The presentation also included a demonstration of SEER*Stat. 

  • An Overview of Prevalence Statistics from SEER
  • 9/25/14 | Registry of the Future Town Hall

    The link to a recording of the live session is available at: https://naaccrinc.webex.com/naaccrinc | This webinar was brought to you by the Registry Operations Advisory Group of NAACCR. Some of the issues that were discussed include:

  • The registry of the future will have to include concurrent abstracting
  • It will have to be paperless
  • Availability of data sources will have to be uniform, or otherwise, registries could specialize and collaborate
  • Review of guidelines around data ownership, use of big data, linkages across data sets
  • Consider linkage to tissue repositories
  • More data is needed in discrete format
  • Multiple, interoperable formats for gathering specific segments of the data set
  • More granular, "mini" data sets enabled by interoperability and flexible formats
  • Longitudinal patient follow-up enabled by complete, accessible health records
  • The registry "client base"; should always include Surveillance but could also include others – physicians, researchers, patients, tissue banks, other disease registries
  • The registry of the future could be built like a disease registry
  • It could support the patient journey
  • It could be interactive with patient and doctor
  • It could more directly influence health care
  • It should always maintain its core values
  •  

    4/25/14 | Annual Report to the Nation on the Status of Cancer, 1975-2010

    Featuring Prevalence of Comorbidity and Impact on Survival Among Persons With Lung, Colorectal, Breast, or Prostate Cancer

    Journal Club Session 3-This session consisted of a panel discussion led by National Cancer Institute colleagues (Annie Noone, Angela Mariotto, and Brenda K. Edwards) on the 2013 Annual Report to the Nation on the Status of Cancer, 1975-2010, Featuring Prevalence of Comorbidity and Impact on Survival. This report is part of a long-term collaboration among NAACCR, the Centers for Disease Control and Prevention & National Center for Health Statistics, and the American Cancer Society. The conversation focused on the main findings in the report, explored the diverse uses of different survival measures, and the importance of incorporating comorbidity in prognostic and survival tools used in clinical decision-making. The report can be downloaded at http://www.naaccr.org/LinkClick.aspx?fileticket=43uyvt6XMlQ%3d&tabid=161&mid=523

    Stream the recording at https://naaccrinc.webex.com/naaccrinc/lsr.php?RCID=9d4e8b98480d9b05b6bd9fae8a26ae00

    Download the Slides

    4/15/14 | How-To-Twitter Webinar

    In this webinar you will learn 1) Who is using Twitter; 2) Twitter basics; 3) How to sign up for Twitter; and 4) Benefits to the cancer registry professionals.

    4/11/14 | Twenty five year follow-up for breast cancer incidence and mortality of the Canadian National Breast Screening Study: randomized screening trial

    Journal Club Session 2-This session consisted of a panel discussion led by Dr. Susan Gershman, Director of the Massachusetts Cancer Registry, Massachusetts Department of Public Health (MDPH). Other presenters include: Anita Christie, Director Office of Clinical Preventive Services (Breast and Cervical Cancer Program), MDPH, and Dr. Andy Coldman, Vice President, Population Oncology, British Columbia Cancer Agency. The discussion focused on the implications of the study findings. The article can be downloaded at http://www.naaccr.org/LinkClick.aspx?fileticket=KJMJw2JU-Ns%3d&tabid=161&mid=523

    Stream the recording at https://naaccrinc.webex.com/naaccrinc/lsr.php?RCID=0a08f6c0915a4563da697a63cd55c25a

    Download the Slides

    Documents:

    3/5/14 | Surveillance Webinars Session 1 - Measuring the Burden of Cancer

    The North American Association of Central Cancer Registries (NAACCR) is pleased to announce a new series of webinars that will focus on methodological issues in cancer surveillance. The first installment in the NAACCR Surveillance Webinars, “Measuring the Burden of Cancer” was held on Wednesday, March 5th, 2014. It was conducted by Chuck Wiggins, Ph.D., Director and Principal Investigator for the New Mexico Tumor Registry.

    Dr. Wiggins began by reviewing the concepts of incidence, prevalence, and mortality. He then provided a brief overview of statistical measures that are commonly used in cancer surveillance, including simple case counts, proportions, rates, and survival. Dr. Wiggins discussed in some detail the rationale and methods for calculating age-adjusted rates. This session is aimed at members of the cancer surveillance community who like to learn about basic methods that are used to summarize and report cancer registry data.

    A recording of the webinar is available at:

    2/26/14 | Edit Writer Demonstration

    Agenda

    1. Overview of EditWriter
    2. How to use Filters to find what you are looking for
    3. How to generate beautiful reports
    4. Questions

    Stream the recording at https://naaccrinc.webex.com/naaccrinc/lsr.php?RCID=9ed5e15e74ca70fab9e8965f98f0ecb7

    2/21/14 | NAACCR Journal Club Session 1- Investigating Suspected Cancer Clusters and Responding to Community Concerns

    The North American Association of Central Cancer Registries (NAACCR) is pleased to announce a new series of webinars presented as part of the NAACCR Journal Club. The first meeting of the Journal club was a presentation led by Dr. Lauren Lewis, M.D., M.P.H., from the Health Studies Branch at the CDC's National Center for Environmental Health. Dr. Lewis led the project team (including Dr. Christie Eheman, Cancer Surveillance Branch) that updated the guidelines from CDC and the Council of State and Territorial Epidemiologists for Investigating Suspected Cancer Clusters and Responding to Community Concerns.

    The guidelines are available at:

    The live discussion occurred Friday February 21, 2014. A recording of the webinar is available at:

    Reshaping NAACCR Committees

    Over the past year, NAACCR’s Board and staff along with numerous volunteers have focused on reviewing existing committee/work group structures. A new committee model has been developed - one that aligns with the NAACCR Strategic Management Plan , provides greater flexibility to address future emerging issues and is focused on using your volunteer time effectively. This is an opportunity to learn about our new Steering Committees, Priority Area Networks and how you as a member can stay involved as a volunteer.

    3/14/13 | CONCORD-2 Data Extraction Webinar

    This webinar describes the process for creating a CONCORD-2 Study file. Chris Johnson from the Cancer Data Registry of Idaho explains the data extraction program that reads a NAACCR file and outputs a CONCORD-2 file. Ron Dewar from the Nova Scotia Surveillance and Epidemiology Unit discussed issues related to preparing data from the Canadian cancer registries.

    The following SAS program has been developed to create a CONCORD-2 file. The program will generate 10 data files for cancer cases diagnosed in your catchment area with one each of 10 index cancers between 1995 through 2009 according to IACR multiple primary rules.

    5/23/12 | Collaborative Stage Data Collection System Vendor Webinar 2

    This was the 2nd of two webinars to provide vendors, software developers, and registry managers.  The main objective was to provide information related to and example of successful implementation of Collaborative Stage. This webinar provided two demonstrations of implementations related to Collaborative Stage and a demonstration of the NAACCR Website for anonymous vendor feedback.

    • The SEER*Abs system in relation to Collaborative Stage
    • The SEER API and Collaborative Stage
    • The NAACCR Website for Vendor/User Feedback on CSv2

    The recording and slides from this webinar are posted below.

    4/11/12 | Collaborative Stage Data Collection System Vendor Webinar 1

    This 90-minute webinar focused on:

    • Practical, easy enhancements that can make vendors’ CSv2 implementation software more user-friendly by leveraging existing CS functions.
    • Demonstrations of CDC and NCI software products that illustrate effective implementations of CSv2 data collection systems.
    • Demonstrations of CDC and NCI software products that illustrate effective implementations of CSv2 data collection systems.

    The recording and Q&A from this webinar are posted below.

    An Introduction to Collaborative Stage Version 02.04 for Software Developers and IT Staff

    The Collaborative Stage Workgroup presented a webinar on Thursday, November 17 for CS vendors, software developers, and registry managers. The focus of the webinar was on the upcoming release of CS version 02.04, and highlighted the changes incorporated into this new release.

    10/27/11 | Shortest Path Tool

    Using this tool, NAACCR members can easily compute shortest travel time or distance between two locations, for instance, residence at diagnosis and treatment center. The resultant data enable researchers to evaluate the impact of travel time or distance on cancer outcomes, such as stage at diagnosis, treatment received, or survival.

    During this audio/video enabled WebEx conference, members of the NAACCR GIS Committee will present how the system works to the broader NAACCR community. Presenters at this meeting will include Recinda Sherman – GIS Committee Chair (Florida Cancer Data Systems); Frank Boscoe, Kevin Henry, and Chris Johnson – the authors of two research papers already published using the Shortest Path Tool (New York Cancer Registry, University of Utah, and Cancer Data Registry of Idaho, respectively); and, Daniel Goldberg – developer of the shortest path tool (University of Southern California Spatial Sciences Institute and Los Angeles County Cancer Surveillance Program). Recinda will provide an overall context for the tool, Chris, Frank and Kevin will describe how the tool can be used in research studies, and Dan will provide a hands-on demonstration of how the tool operates. The Town Hall is appropriate for all members of the NAACCR community and particularly for researchers, analysts, and managers interested in studies addressing the influence of distance on cancer diagnosis, progression, and survival.

    6/9/11 | Hospital Discharge Data

    The NAACCR Discharge Data Work Group, the National Program of Cancer Registries-Advancing E-cancer Reporting and Registry Operations (NPCR-AERRO) and the National Association of Health Data Organizations (NAHDO) have been working together on a hospital discharge data project. Hospital discharge data, all-payer claims data and cancer registry data have typically been used as separate resources for understanding cancer prevalence, incidence, resource use, quality of care and cost. There are opportunities to link these sources to further address important questions for cancer researchers, epidemiologists, health services researchers, policy makers, and program managers.

    The purpose of this project was two-fold. First, a gap analysis was conducted to address data elements that could be standardized, added or improved between these data types. Second, an examination of the types of questions that could be answered, using combined databases, was developed. Recommendations on the GAP analysis are found in the NAACCR-UB-GAP document (this document will be provided prior to the town hall meeting); this document addresses a prioritized list of questions. In addition, for those questions given high priority, we provide the key data elements necessary to answer the question. This paper was produced by NAHDO. State agency, federal staff, and work group members provided NAHDO with input on the gaps, priorities, and limitations of the data sources.

    The NAACCR Town Hall gave NAHDO staff the opportunity to present their documents to the NAACCR membership. The meeting fostered an exchange of ideas and allowed members to ask questions of the NAHDO experts.

    5/26/11 | Death Clearance in Canada

    1/12/10 | Board of Directors Nomination and Election

    The NAACCR Nominating Committee and the NAACCR Board of Directors presented a webinar describing the NAACCR Board of Directors nomination and election process. This webinar was free for the members of NAACCR to attend.

    11/17/10 | CSv2 Vendors Webinar - v02.03

    CSv2 Team Members presented a free webinar for cancer registry software vendors, central registry managers and IT staff on Wednesday November 17, 2010. The main focus of this webinar was the release of CSv2 version 02.03.00 and the schema updates resulting from the validation project.

    10/25/10 | Collection and Use of Industry and Occupation (I&O) Data

    Occupational workplace exposures are recognized as an important cancer risk factor. Cancer registry data may be a source for occupational cancer surveillance. In an effort to improve the completeness, quality and consistency of these data, NAACCR and CDC NIOSH created the webinar, “Collection and Use of Industry and Occupation (I & O) Data”.

    6/29/10 | Linking Cancer Registry Data with the National Death Index (NDI): Information and Steps for Successful Linkage - Part I

    6/17/10 | CONCORD-2 Study, Worldwide Surveillance of Cancer Control

    5/21/10 | National Data Exchange Webinar

    4/30/09

    3/10/10 | Death Clearance Manual

    NAACCR presented a webinar to the NAACCR membership on the Death Clearance Manual. The webinar live webinar was held Wednesday, March 10, 2010 1:00 pm ET. A copy of the recording, slides from the webinar and the Q&A are available using the link below.

    Call for Data 2008 Help Line Summary

    Research Program Update & Discussion by Dr. Holly L. Howe

    Presentations of Committee Activities: Institutional Review Board (IRB), Scientific Editorial Board (SEB), and Cancer Registration Steering Committee (CRSC)

    By Drs. Holly L. Howe, Myles Cockburn, and Elizabeth Ward

    Presentations of Committee Activities: Program and GIS by Drs. John J. Graff and Frank P. Boscoe

    Presentation of Committee Activities: Information & Technology (IT) and Uniform Data Standards (UDS) Committees by Mr. Ken Gerlach and Mr. Andrew Stewart

    Presentation of Committee Activities: Education and Registry Operations Committees by Ms. Mignon Dryden, Ms. Susan Bolick-Aldrich, and Dr. Susan T. Gershman

    Registry Operations and Data Tools by Dr. Holly L. Howe

    Presentation of Committee Activities: Bylaws, Communication, and Nominating Committees by Ms. Maureen MacIntyre, Mr. Dan Curran, and Dr. Vivien W. Chen

    Presentation of Committee Activities: DUR and DEC Committees by Drs. Maria J. Schymura and Thomas C. Tucker

    Call for Data 2007 Help Line Summary

    VA Hospitals Reporting: Issues and Resolution Efforts by Drs Holly Howe, Dee West, Bill Wright, Dennis Deapen, Liz Ward and Ms. Reda Wilson

    NAACCR Research Program: Growth and Directions by Dr. Holly Howe

    Presentation of the Research Study: Spatio-Temporal Estimation of Cancer Incidence by Dr. Linda Pickle

    Report to the Membership on the Financial Status of NAACCR by Betsy Kohler

    Presentation of the Research Study: The Breast Cancer Sister Study by Dr. Dale Sandler

    Activities of the NAACCR Data Use and Research Committee for the NAACCR Research Program by Drs Maria Schymura and Holly Howe

    Presentation of the Seventh Day Adventist Study by Drs Gary Fraser and Susan Preston-Martin

    Presentation on Development of the NAACCR Research Program by Drs. Dennis Deapen and Holly Howe

    Presentation on NAACCR Member Access of the NAACCR Research Data Files by Drs. John Fulton, Dennis Deapen, and Holly Howe

    Interoperability Webinars

    For resources and recordings associated with NAACCR Interoperability Webinars, see the Interoperability Resources page.