NAACCR | North American Association of Central Cancer Registries

Bibliographies

Brain

• Brain Tumor Working Group. National Coordinating Council for Cancer Surveillance Brain Tumor Working Group 2004 Report.  National Coordinating Council for Cancer Surveillance. July 2004
• Brain Tumor Working Group. Surveillance of Primary Intracranial and Central Nervous System Tumors: Recommendations from the Brain Tumor Working Group. National Coordinating Council for Cancer Surveillance. September 1998.

CINA Highlights

• Zeig-Owens R, Knowlton R, Gershman ST, Howe HL. CINA Highlights of Cancer Incidence and Mortality in the United States and Canada, 2000-2004. Springfield, IL: North American Association of Central Cancer Registries, Inc. October 2007

Colorectal Cancer

• Wu XC, Chen VW, Steele B, Ruiz B, Fulton JP, Liu Lihua, Carozza SE, Greenlee R. Subsite-Specific Incidence Rate and Stage of Disease in Colorectal Cancer by Race, Gender, and Age Group in the United States : American Cancer Society, August 2001, pages 2547-2554.
• Wu XC et al. Subsite-Specific Colorectal Cancer Incidence Rates and Stage Distribution Among Asian Pacific Islanders 1995-1999 : Cancer Epidemiology Biomarkers and Prevention, pages 1215-1221.

Confidentiality

• Annotated Bibliography on Confidentiality in Data Release - Confidentiality Subcommittee of the NAACCR Data Use and Research Committee
• Howe HL, Lake AJ, Shen T. Method to Assess Identifiability in Electronic Data Files. Am J Epidemiol 2006 (Dec 20), Advanced Online Release
• Howe HL, Lake A, Lehnherr M, Roney D, and Members of the CINA Deluxe Advisory Committee. Unique Record Identification on Public Use Files as Tested on the 1994-1998 CINA Analytic File. A Report of the CINA Deluxe Advisory Group. August 2002.

Data Aggregation

• 2002 NAACCR Workshop Report: Data Security and Confidentiality, May 2002
  (PDF)   (Word)
• CINA Deluxe Beta Test Workshop Report, March 2000, prepared by Holly L Howe, PhD (PDF)
• Howe HL. Recommendations for Public Use Files of National Cancer Data. Sacramento, CA: North American Association of Central Cancer Registries, November 1997. (A report of a workshop held in Colorado Springs, August 25-27, 1997)
• Howe HL. Population-based Cancer Registries in the United States, in Howe HL (Ed.) Cancer Incidence in North America, 1988-1990. Springfield, IL: North American Association of Central Cancer Registries, April 1994, pages VI-1 - VI-10.

Geographic Information Systems

• Wiggins L (Ed). Using Geographic Information Systems Technology in the Collection, Analysis, and Presentation of Cancer Registry Data: A Handbook of Basic Practices. Springfield (IL): North American Association of Central Cancer Registries, October 2002, 68 pp.

HL7

• Working Toward Implementation of HL7 in NAACCR Information Technology Standards: Meeting Summary Report

In Situ Tumors

• Howe HL, Wu XC Data Quality Assessment for the Project, Evaluation of In Situ Tumors Reported to Cancer Registries. Epidemiologic Description of In situ Tumors Reported To Cancer Registries, 1995-2005-Final Report Epidemiologic Description of In situ Tumors Reported To Cancer Registries, 1995-2005-Excel Tables

Lung

• Carozza SE et al, Recent Changes in Lung Cancer Incidence for Selected States and Metropolitan Areas, in Chen VW (Ed.). Cancer in North America, 1990-1994. Sacramento , CA: North American Association of Central Cancer Registries, April 1998 Vol 1; V-1- V-16.
• Chen VW, Wu XC, Andrews PA, Howe HL, Fulton JP, Correa CN, Roffers SD. Comparative analysis of lung cancer incidence rates in the United States. Cancer Incidence in North America, 1988-1992. Sacramento, CA: North American Association of Central Cancer Registries, April 1 996, V-1-V-14.

Ovarian Cancer

• Descriptive Epidemiology of Ovarian Cancer in the United States, 1992-1997 CANCER (Supplement) 2003(May15);97/10:2615-2706

Pediatric & Young Adult Cancer

• Wu XC, Groves FD, McLaughlin CC, Jemal, A, Martin J, Chen VW, Cancer incidence patterns among adolescents and young adults in the United States, June 24, 2004
• Carozza SE et al, Childhood Cancer Incidence in North America, 1988-1992, in Howe HL (Ed.). Cancer in North America, 1989-1993. Sacramento, CA: North American Association of Central Cancer Registries, April 1997 Vol 1; V-1-13

Race/Ethnicity Issues

• NAACCR Latino Research Workgroup. NAACCR Guideline for Enhancing Hispanic/Latino Identification: Revised NAACCR Hispanic/Latino Identification Algorithm [NHIA v2]. Springfield (IL): North American Association of Central Cancer Registries. September 2005.
• Howe HL, Evaluation of NHIA Submissions for 1997-2001. Springfield, IL; North American Association of Central Cancer Registries, January 2005.
• Greenlee R. Evaluation of Methods to Estimate & Compare Race/Ethnicity Specific Cancer Incidence Rates Using Combined Central Cancer Registry Data. Springfield, IL: North American Association of Central Cancer Registries, June 2004.
• O'Malley C, Hu K, West D. Race and Ethnicity Identifier Assessment Project: NAACCR, March 2002, pages 2-55
• Report of the NAACCR Expert Panel on Hispanic Identification 2003. Springfield (IL): North American Association of Central Cancer Registries
• NAACCR Uniform Data Standards Committee, Subcommittee on Methodologic Issues of Measuring Cancer Among Hispanics, "Final Report of Atlanta Symposium" [held January 19-20, 1996]

Real-Time Reporting

• Real Time Reporting Recommendations (Approved by the Board of Directors April 19, 2006) (Word)
• NAACCR Real Time Reporting Task Force - Report to the Board, January 2006.

Socioeconomic Disparities

• Howe HL, Lake A. An Identifiability Assessment of CINA Deluxe with Area-based SES Measures
  
• Smigal C, Jemal A, Ward E, Cokkinides V, Smith R, Howe HL, Thun M. Trends in Breast Cancer by Race and Ethnicity: Update 2006. CA Cancer J Clin. 2006 May-Jun; 56(3):168-83.

Summary Stage

• Site-Specific Comparison of Summary Stage 1977 and Summary Stage 2000 Coding
• Summary Stage Data Effects of the Changes in 2000

Urban-Rural Incidence

• Howe HL, Urban-rural Gradients in Cancer Incidence and Mortality in the United States. Springfield, IL:  North American Association of Central Cancer Registries, Inc.  August 2004.
• Fulton JP et al, Urbanization in Cancer Incidence, United States, 1988-1992, in Howe HL (Ed.), Cancer in North America, 1989-1993. Sacramento, CA: North American Association of Central Cancer Registries, April 1997 Vol 1; VI-1-9