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Chen VW. The right to know vs. the right to privacy. J. Reg Manag. 1997; 125-127

At-a-glance
ApplicationLevelRegistry UsersCustomers Users
PrinciplesBasicManagement
Steward
Research/Surveillance
Research
Public Health Professional
Link: http://www.naaccr.org/filesystem/pdf/Chen_1997_JRM.pdf

Overview:
Document is Copyright © National Cancer Registrars Association (NCRA), Journal of Registry Management.

This paper provides guidelines and examples of policies and procedures for the use of cancer registry data in research studies. It includes an example of a public usage data agreement as well as a list of things to include in requests for use of individual data for a specific research study. It also discusses additional considerations for linked data.