Annotated Bibliography on Confidentiality Protection in Data Release

Reports

U.S. National Center for Health Statistics Staff Manual on Confidentiality
U.S. Healthy People 2010 Criteria for Data Suppression
Secondary Use of Personal Health Information in Health Research : Case Studies, Canadian Institutes of Health Research. Public Works and Government Services Canada, 2002
Secondary Use of Personal Health Information in Health Research : Case Studies, Canadian Institutes of Health Research. Public Works and Government Services Canada, 2002
Tri-Council Policy Statement (TCPS) : Ethical Conduct for Research Involving Humans. Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, and Social Sciences and Humanities Research Council of Canada. Public Works and Government Services Canada, 1998. (with amendments in 2000, 2002 and 2005)

Software and Tools

Checklist on Disclosure Potential of Proposed Data Releases, July 1999

Articles

McLaughlin CC. Confidentiality protection in publicly released central cancer registry data. J. Reg Manag. 2002; 84-88

Books

Deapen D, Legislation, Regulations, and Confidentiality. In Central Cancer Registries, Design, Management and Use, 2nd Edition, Menck HR, Deapan D, Phillips JL and Tucker TC editors. 2007. Kendall/Hunt. Dubuque Iowa

SPONSORS with DISTINCTION

Other PARTNERS

LEGAL

© 2010 NAACCR, Inc. All rights reserved.

This web-site is supported in part with Federal funds by Cooperative Agreement Number 5U58DP001803 from CDC. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the CDC. This web-site is also supported in part with Federal funds from the National Cancer Institute, National Institutes of Health, Department of Health and Human Services, under contract number HHSN261200900015C / ADB No. N02-PC-2009-00015. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the NCI, NIH, or DHHS.